Haberstroh, Julia
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Publication Access status: Metadata only , Do Mental Health Professionals Recognize Dementia Grief?(2024); ; Dementia grief can be challenging to detect because it is often disenfranchised. This study examined whether mental health professionals detect or overlook dementia grief. An online survey presented health professionals with a case vignette regarding the caregivers of people with dementia (PwD). Based on random assignment, the participants read a case description of a PwD who was deceased or still alive. We analyzed the responses of 381 participants. Significant group differences for the variables grief attribution, loss attribution, expected self-disenfranchisement, grief support/grief group recommendation, and psychotherapeutic/psychiatric counsel recommendation resulted. Even though professionals in this sample had continued grief education, loss and grief attribution in nondeath event losses were significantly lower, confirming that dementia providers disenfranchise dementia grief.Source Type:Article1 - Some of the metrics are blocked by yourconsent settings
Publication Access status: Metadata only , Project DECIDE, part II: decision-making places for people with dementia in Alzheimer’s disease: supporting advance decision-making by improving person-environment fitBackground The UN Convention on the Rights of Persons with Disabilities, and the reformed guardianship law in Germany, require that persons with a disability, including people with dementia in Alzheimer’s disease (PwAD), are supported in making self-determined decisions. This support is achieved through communication. While content-related communication is a deficit of PwAD, relational aspects of communication are a resource. Research in supported decision-making (SDM) has investigated the effectiveness of different content-related support strategies for PwAD but has only succeeded in improving understanding, which, although one criterion of capacity to consent, is not sufficient to ensure overall capacity to consent. The aim of the ‘spatial intervention study’ of the DECIDE project is to examine an innovative resource-oriented SDM approach that focuses on relational aspects. We hypothesise that talking to PwAD in their familiar home setting (as opposed to a clinical setting) will reduce the complexity of the decision-making process and enhance overall capacity to consent. Methods People with a suspected or confirmed diagnosis of dementia in Alzheimer’s disease will be recruited from two memory clinics ( N = 80). We will use a randomised crossover design to investigate the intervention effect of the decision-making place on capacity to consent. Besides reasoning capacity, which is part of overall capacity to consent and will be the primary outcome, various secondary outcomes (e.g., other aspects of capacity to consent, subjective task complexity, decisional conflict) and suspected moderating or mediating variables (e.g., meaning of home, demographic characteristics) will be assessed. Discussion The results of the study will be used to develop a new SDM strategy that is based on relational resources for PwAD. If a change in location achieves the anticipated improvement in capacity to consent, future research should focus on implementing this SDM strategy in a cost-effective manner in clinical practice. Trial registration : DRKS00030799 .Source Type:Article1 - Some of the metrics are blocked by yourconsent settings
Publication Access status: Metadata only , Reducing Dementia Grief Through Psychosocial InterventionsThis review assessed the existing dementia grief interventions for caregivers of persons with dementia (PwD) prior to physical death from September 2016 to September 2021. Electronic databases Web of Science (SSCI), PsycArticles, Psychology and Behavioral Sciences Collection, PsycINFO, PSYNDEX Literature with PSYNDEX Tests, and MEDLINE were searched. Fifty-five publications meeting predetermined criteria were screened of which 12 were included in this review. Included interventions were multifaceted and the intervention format was heterogeneous. There has been a vast increase in dementia grief interventions in the last 5 years implying that the concept has been recognized as a valid and important construct to describe the caregiver experience. Implementation research should be undertaken to explore how well the concept of dementia grief is known and recognized and how elements of the interventions are used in everyday mental health care.Source Type:Article1 - Some of the metrics are blocked by yourconsent settings
Publication Access status: Metadata only , The Role of Different Aspects of Communication Behavior in the Assessment of Capacity to ConsentAny medical treatment that interferes with physical integrity requires the informed consent of a patient capable of such consent. For people with dementia, the capacity to consent is questioned even in the early course of the disease. Particularly diagnostic instruments like the MacArthur Competence Assessment Tool for Treatment (MacCAT-T) often deny people with dementia the capacity to consent because of high confounding of the results with patients’ verbal abilities. To date, it remains unclear whether not only verbal but also nonverbal communication is associated with assessments of capacity to consent. The current study investigates associations between patients’ verbal and nonverbal communication behaviors as assessed by the measure for Communication Behavior in People with Dementia in Ambulant Settings (CODEM amb ) and capacity to consent as assessed by the MacCAT-T. We expected the strongest positive associations for verbal communication behaviors compared to nonverbal communication behaviors. Data of N = 43 patients with dementia ( n = 8 capable of consent) were collected at two different German psychiatric clinics. The results show small to moderate correlations between the overall scores of CODEM amb and MacCAT-T. As expected, correlations were strongest for the verbal CODEM amb subscale. The results support current findings on the dependency of the MacCAT-T on verbal communication. Based on the findings, the discussion addresses how people with dementia can be enabled to make self-determined medical treatment decisions.Source Type:Article3
